Friday, January 23, 2009


Today was a bad day. Attacks were back to back. I even went to 4 carbamezapine today. Still having that dull burning background pain. Haven't eaten all day. Well wait, I started eating breakfast and that's when the pain erupted. No food since then. Too risky.

Sunday, January 18, 2009


I want to document some symptoms before I forget when I had them...

In the past week:

Depression - severely and combined with exhaustion (sleeping 12+ hours).
Severe joint pain, especially in fingers and knees
Arm & leg weakness - can't walk sometimes and can't lift the baby
Arm and leg numbness - mostly arms. Can't type even for long periods of time because my hands and forearms start tingling with some minor pain
Migraine - just one, today. Couldn't move my right eye very well without it hurting. Tried to move my eyes around and the right one just wouldn't cooperate. Hurt to move it to the left or right and left like something was in my eye when I moved it down. Actually, when looking down, my right eyelid closed, couldn't control it. Very scary as this was the same eye that had was "desensitized" during my neuro exam in early Dec.
Dizziness - lots of it - causes me to stumble
Eye strain or eye exhaustion - here and there - even when wearing corrective lenses

Only 2 episodes of TN that were quick and tolerable.

I DID NOT up my carb permanently - I did it for 2 days and then decided to reverse my decision.

Saturday, January 3, 2009

It's January Already!

My neuro retired in Dec but on his last day he upped my carbamazepine to 800mg/day from 600mg.

Doing the best I can in the situation and I am thankful for my husband, parents, and inlaws.

I've found that prayer and my faith have been a staple. Faith makes the negative look so much brighter.

For anyone who reads this, please know that I am not trying to be a martyr or a complainer. This blog helps me to track my triggers, treatments, and progress. Without it, everything is a haze. I hope it also helps all of the people on the right (in the TN widget), because I know their blogs, forum discussions, and comments on LivingWithTN have helped me.