Here I am four plus years later, (three years since I last blogged)
I still take gabapentin. I take one 300mg pill daily.
I still get attacks. Sometimes my husband has to take his FMLA leave at work to come home and be with me. Sometimes they are quick, minor, and passing. Sometimes it feels like mouth is burning for hours at a time, a slow burn.
Something new - the last four months or so I have been getting pain under my right eye. It happens like an electric shock and is fleeting. It's usually co-occurring with the burning pain in my jaw.
I have applied for Social Security disability. I tried to work last summer and I only lasted about 12 weeks. Even though I am no longer in pain every day almost the entire day (thanks to MVD surgery), I still had to miss days at work due to spontaneous attacks. It's frustrating because you never know what will trigger it. I feel my biggest trigger is stress.
I am going to have to schedule a doctor appointment with my neuro to discuss the frequency of the pain and the new pain going on in under my eye.