Monday, May 4, 2009


This weekend feels like it set me back about 6 months.

I have been eagerly waiting for my appt with my new neurologist. It's tomorrow. I will remind that my diagnosing neuro retired without my knowledge in Jan. I didn't even know until I tried to make an appt.

I only had enough refills to make it to about one week before my next appt. My GP promised to get me refilled until then.

My pharmacist sent the auth to my GP last Wednesday. It is Monday night and I am still without meds. My meds ran out Friday night. I was hoping to pick them up Saturday morning. My doc office had 3 full days to sign and return before the weekend and they didn't. My pharmacy has sent 3 faxes on my urging. There is a medical assistant with whom I've been dealing that is rude beyond imagine anytime I've had to speak with her the last 3 months. She keeps denying any faxes coming through. I gave up calling after the 3rd fax. I have a really serious letter for that doctor and his office regarding little miss med assist. Oh, and my pharmacy refused to give loaner pills through the weekend.

I am beyond exhaustion and pain. I went off my meds abruptly, no stepping down and I feel like I've been hit by a truck. I have a friend who is a pharmacist in Seattle and she notes it is probably withdrawal symptoms. I am so very frustrated, confused, upset, and most of all, in pain. For the first time, I've been feeling it on one side of my tongue also.

The past month I've also had more weird symptoms besides the numbing epsiodes. Out of nowhere, I will get sharp burning pains in my feet. Sort of like stabbing. It makes me grab them and try pushing on them to get it to stop but it doesn't. The whole thing lasts maybe a minute and then they are gone. Always just one foot or the other, usually on one side.

Sometimes I think I make more of symptoms than it really is but at this point, anything could be a symptom.
I am really praying to get my meds tomorrow from the new neuro and I pray that the pain subsides soon. I just want this all to go away.

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