Side Effects or Pain?

I am sitting here trying to think of what to say. Where do I start now? I am completely screwed up. I seriously cannot function on these meds, AND they are only helping the pain for a little while. If I take a normal dose, the burning is still there and I get a few 4.0 shocks. If I take a double dose, the burning subsides for a bit, as well as the jabs, but I either become a zombie or a drunk Chatty Cathy. Either one is terrible. I think if I only double dose once a day and take the rest as perscribed, I am more zombie like. Double dosing all day long makes me the chatty one.

Now, the big deal for me. I am having 10.0 attacks about 4 times a day. Then I get the little 4.0-7.0 after shocks here and there. I am devoted to my ice packs to help distract from the pain. My husband's family had a reunion this weekend. On Friday morning, I spent it in bed with bad attacks. Then throughout the day I had the little ones; tolerable attacks. Nightime brought back the bad ones and we had to go home. Saturday his cousin got married. I spent some of the reception crying my eyes out in the car because of a huge attack. Sunday has been the same.

Side effects: Extreme ticks/jerks. They are getting worse although I have been taking the same extreme doses for the last 5 days. Double vision, extreme fatigue, drunk feeling. The thing that bothers me the most are the jerks in my hands and fingers. My hands, arms, legs, and feet will also go numb. It's mostly in my fingers, hands, and toes. Then next my lower legs, then my arms.

And guess what? The pain still comes back. I am scared that if I lower the dosage the pain will be worse than it already is now. I am going to my neuro on Tuesday. I have also contacted Gamma Knife of Spokane for a consultation.

Will provide more news when it comes.